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Welcome to this weeks Newsletter. We hope you are all keeping safe and well. Please note that our Freephone Helpline 1800 359 359 is open from 9am - 7pm Monday to Thursday and 9am - 5pm on Fridays. If you wish to avail of our Nurse led call back service please phone the Helpline to arrange a call.
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An Post Community Services During Covid:
A fantastic service that our members can benefit from. An post has just launched ‘Community Focus’, an expanded range of post office and postal delivery supports that are focused on helping communities stay connected read about it here anpost.com/CommunityFocus
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EPDA SURVEY ON DROOLING: In October 2020, the EPDA launched a survey focused on drooling (sialorrhea) – a very important yet often-overlooked Parkinson’s symptom.
This survey is aimed at people with Parkinson’s who experience drooling due to their condition, as well as at their family members and carers who may have important insights about the symptom to share. By collecting this data, we aim to understand the prevalence of drooling in people living with Parkinson’s as well as the difficulties this symptom causes – from a physical, well-being and daily living perspective. In addition, we hope to gather information about if, when and how this symptom is addressed by healthcare teams. The survey findings will help us create awareness among healthcare professionals about the prevalence of drooling as a symptom of Parkinson’s and the different treatment options available.The survey questionnaire takes no more than 10 minutes to complete and it is open until 15 November 2020. To complete the survey Click Here |
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Dancing Well with Parkinson's at Home FREE Classes:
Dancing Well with Parkinson's at Home
FREE Classes, Join us! Fridays @ 11-12:00
Tell your friends! Dance Theatre Ireland (DTI) offer a FREE modern
dance class on Fridays, 11am-12:00pm for People with Parkinson’s and
their Care-Partners, in the comfort of your own home, Online with
ZOOM. Simple, fun movement & exercises, rich in musicality and imagery. ALL done to GREAT music. Seated and/or standing, it’s a “Do as
you are Able” Class. DTI is part Dance for PD®
, a dance programme
which is proven to improve the physical and emotional well-being of
people with Parkinson’s in over 100 communities around the world.
Positively JOYFUL!! Join us. NOTE: Register well before Friday!
To Sign up: info@dancetheatreireland.com OR 01 280 3455
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Survey On Change to Sinemet Plus Medication: Please see the video and survey link below regarding the change to Sinemet Plus, as we are trying to find out the extent of this issue by sharing it on as many platforms as possible. Please complete so as we can get as much feedback as possible, thank you. https://survey.zohopublic.eu/zs/rzED2Y |
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Midwest Branch News:
Dears Friends in the Midwest. We are delighted to announce that we have been lucky enough to appoint a second Parkinsons Nurse Specialist to our Nursing team. This is a 50/50 arrangement with the HSE. We were lucky enough to receive an inheritance from a lady who attended a fund raiser and could see the work of the Branch and what we needed. Mags was finding it very difficult manging each side of the region trying to give every patient her time and care. Nicola started with us on 17th August and has settled in extremely well. She comes with great experience and knowledge of all aspects of nursing care and will be a great asset to the team. Needless to say, Mags and Catherine are working very well with her. Stay safe all of you. Our team will be writing to you shortly. Regards Una 087 2511156 |
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Donegal Branch News:
Hi Members, I hope you are all keeping well and active during these difficult times. Our physio classes will continue and I hope you are benefiting from them. Keep safe and hopefully we will get an opportunity to meet in the not too distant future. Should you have any queries please do not hesitate to contact me. Ann Foxe
0861605847 |
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Cork Branch News Online Psychotherapist Talk Via Zoom: Our speaker on Monday is Monica Navarro-Hickey, Monica is a Psychotherapist, a member of the IACP, and has been working with Lisheen House for the last 2 years. Monica is going to talk about coping mechanisms to help us through the lock-down. as well as Anxiety, stress and loneliness. Zoom meeting is open to anyone, as the information will be of help to anyone wherever they are.
Tony Wilkinson is inviting you to a scheduled Zoom meeting.
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Alone Corona Helpline: ALONE launch a COVID-19 support line for older people Working in collaboration with the Department of Health and the HSE Contact ALONE on 0818 222 024 if you have concerns about your own wellbeing, or the wellbeing of an older person you know. Further information can be found on www.alone.ie. |
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Thank you to the women involved in the PD-MitoQUANT (www.pdmitoquant.eu) Parkinson’s research project completed the Vhi Virtual Women’s Mini-Marathon to raise funds to benefit the Parkinson’s Association of Ireland. Partners at the RCSI, Royal College of Surgeons in Ireland and Pintail Limited coordinated their efforts on October 2, 2020. Clad in bright green Parkinson’s Association of Ireland tee shirts, the team included Orla Watters, Niamh Connolly, Helena Bonner, Patsy Connolly, Elena Langa, Giorgia Conte and Elisabeth Jirstrom of the RCSI, and Kylie O'Brien and Danielle Nicholson of Pintail Limited. Runners completed their routes in counties Dublin, Sligo, Meath and Offaly. To date, €770 was raised by the PD-MitoQUANT team. .
Parkinson’s
Research
in Ireland. A public evening of accessible talks
to communicate ongoing and future
research in Parkinson’s followed by a
Q&A session. All are welcome!
Date: 11th November Time: 5:30pm-9pm
Location: Online See Eventbrite for more info
Register free at Eventbrite: bit.ly/2O9hM3N |
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| Parkinson's Disease Survey Participants Needed:
At UCC, we are surveying the views of people with Parkinson’s disease on health service provision in Ireland. People with Parkinson’s can complete this national survey alone, or with support from someone else, e.g. a family member. We are asking that you complete a 15-20 minute anonymous survey about your experiences of accessing and using health services in Ireland, and your thoughts on improving care for people with Parkinson’s. Have your say in informing health service development for Parkinson’s disease in the future. To following link leads to further information about the survey, as well as the survey itself: https://forms.gle/jiCLafAHVMbReE7i6
Paper copies of this survey are available on request. Alternatively a researcher can call you to conduct the survey over the phone. Contact Dr. Emma O’ Shea (UCC): Mobile: 0860354526 Email: emma.oshea@ucc.ie |
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If you have any news that you would like to be included in the Newsletter, please send it on to Sabrina at sabrina@parkinsons.ie If any Branch Committees are aware of any of their members who are unable to access the internet to receive the newsletter can you please send it on to them via your own usual communications channels, thank you. |
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